About the Program
The KBG Foundation welcomes you to the KBG Family Network Program for KBG Syndrome-affected families.
The purpose of this regional program consists of the following:
- Identify and welcome KBG Syndrome Ambassadors
- Identify and welcome Youth Ambassadors (program in development)
- Develop and facilitate in-person Family Days
- Recommend sites for clinic days at/near your local medical center
- Identify and utilize regional resources
Once this program is successfully rolled out and being used, it is the KBG Foundation’s intent to established it globally.
Within this program, the KBG Foundation hopes to sponsor Family and Clinic days at least annually as well as help our ambassadors heighten their leadership skills in supporting others with KBG Syndrome and serve as a liaison with local agencies, organizations and service providers.
The Foundation has allocated a budget for each region dependent upon donations and available funds. All Foundation personnel and Ambassadors work as volunteers, receive NO salary and must adhere to the Foundation's Gifts and Reimbursement Policy and the Petty Cash Policy.
Find your Region
Which region are you in?
Find your region, your Ambassador and additional resources for your home area!
Help Fund the KBG Family Network
Your support and contributions will enable us to meet our goals and improve quality of life. Your generous donation will help families meet one another and further medical care.
