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KBG Foundation

KBG SYNDROME AWARENESS DAY - June 11!

Why June 11? Does it have a special meaning?

In 2015, two parents received the KBG syndrome diagnosis for their son on June 19, and within days they had established the KBG Foundation. A year later, June 21 was celebrated as the first ever KBG syndrome awareness day by the 71 families known to have been diagnosed at that time. 


In 2017, the KBG Foundation Board of Directors voted to recognize awareness day annually on June 19, the date the founders' son was diagnosed.


On KBG Day 2020, several families reached out to the Foundation to ask if awareness day could be moved so it would not conflict with Juneteenth, which at the time had not been designated an official holiday, and was not widely celebrated in some of the states where board members lived. 


The Foundation Board voted to change the date to June 11: a hat tip to the ANKRD11 gene. 


Ways to raise Awareness!

Wear your KBG syndrome merch!

Wear your KBG syndrome merch!

Wear your KBG syndrome merch!

Looking for a cool KBG syndrome shirt? Maybe you'd enjoy a nice pillow or hat? We've got that! Visit the KBG syndrome Merchandise store!

Get your KBG Syndrome Merchandise

Create a Social Impact

Wear your KBG syndrome merch!

Wear your KBG syndrome merch!

 Use these tools to help you raise awareness about KBG syndrome and the KBG Foundation year-round. You’ll find social media frames, downloadable activity pages, a guide to request a KBG Syndrome Awareness Day state proclamation and more.

Download the graphics

KBG Rocks!

Wear your KBG syndrome merch!

Activity Pages

 This year-round, international activity is a creative way to showcase your support for KBG syndrome awareness and provide a shareable smile while doing it!  We invite you to join the FB KBG Rocks! Group and get painting!  

Join the Group

Activity Pages

Get a Proclamation!

Activity Pages

Get this fun and educational 21 page Activity Book and learn more about KBG syndrome in a fun, colorful way!

Download the Activity Book!

Get a Proclamation!

Get a Proclamation!

Get a Proclamation!

Each city, state, town and province has a way to proclaim a specific date to be of special significance. Learn how to get a proclamation in your state!

Download the Proclamation Guide

Fundraising

Get a Proclamation!

Get a Proclamation!

  The KBG Foundation is an all-volunteer 501(c)3 organization that relies on individual and corporate contributions to run our programs. Want to hold a fundraising event in your community? Check out our guide to help you get started.

Get the Fundraising Guide

Featured Products

Awareness Day Around the World!

The Midwest Family Region Awareness Day Event!

KBG Syndrome Day Proclamations!

These cities and states proclaimed June 11 KBG syndrome awarness day!


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