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KBG Foundation
Give Hope Today

About KBG Syndrome

About the KBG Foundation

About KBG Syndrome

Learn about this rare genetic disorder that is associated with a wide spectrum of challenges.

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What's New?

About the KBG Foundation

About KBG Syndrome

Find research opportunities, Foundation news, awareness events, and recent scientific discoveries.

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About the KBG Foundation

About the KBG Foundation

About the KBG Foundation

Meet the people behind the only U.S.-based nonprofit devoted exclusively to KBG syndrome.

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KBG Syndrome Ongoing Research Opportunities

NEWLY DIAGNOSED?

Wondering what to do now?

The KBG Foundation is here to accompany you on your journey with KBG. Read our “Newly Diagnosed”

guide and find out more about what the diagnosis means and what specialists you might engage in your

care.


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Your contributions enable us to continue funding research into better understanding KBG syndrome and pursuing treatments, as well as supporting families through our programs. The KBG Foundation is an all-volunteer 501(c)3 organization.

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