Learn about this rare genetic disorder that is associated with a wide spectrum of challenges.
Find research opportunities, Foundation news, awareness events, and recent scientific discoveries.
Meet the people behind the only U.S.-based nonprofit devoted exclusively to KBG syndrome.
The KBG Foundation is here to accompany you on your journey with KBG. Read our “Newly Diagnosed”
guide and find out more about what the diagnosis means and what specialists you might engage in your
care.
Your contributions enable us to continue funding research into better understanding KBG syndrome and pursuing treatments, as well as supporting families through our programs. The KBG Foundation is an all-volunteer 501(c)3 organization.
Learn more about our upcoming events, fundraisers, and more!